92NY’s Goldman Center for Children and Family provides an exceptional array of programs designed to support children at every stage of their development.
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Mar 19, 2026
When breathing becomes difficult, everything else in life can feel harder too. Pulmonary fibrosis (PF) is a serious lung condition, but for many people, the diagnosis raises more questions than answers.
What is pulmonary fibrosis, exactly? How is it different from interstitial lung disease? What causes it, how is it treated, and what can actually help you feel better day to day? This in-depth, patient-centered conversation explores the evolving science while keeping a firm focus on lived experience and practical care. Leading pulmonary specialists will break down the fundamentals of pulmonary fibrosis and interstitial lung disease (ILD), including symptoms, diagnostic pathways, and current treatment options — from medications to non-pharmacologic approaches. Special attention will be given to the familial aspects of the disease and to the growing network of resources available to patients and caregivers navigating an ILD diagnosis.
The discussion will also explore pulmonary rehabilitation, an essential but often underutilized component of care. Panelists will address how pulmonary rehab can improve physical endurance, breathing efficiency, and overall quality of life, while also supporting mental health, confidence, and resilience in the face of chronic lung disease.
Featuring Dr. Christian Becker, physician-scientist at Mount Sinai School of Medicine, and Director of the Mount Sinai Pulmonary Rehabilitation Program, whose research and clinical work focus on IPF and other pulmonary diseases, alongside Dr. Amy Hajari Case, Chief Medical Officer of the Pulmonary Fibrosis Foundation (PFF) and a national leader in advanced lung disease care directing the PFF Care Center at Piedmont Healthcare, Atlanta, Georgia, this program offers expert insight, up-to-date research, and actionable guidance.
Whether you are living with pulmonary fibrosis, supporting someone who is, or seeking a deeper understanding of the disease, this conversation aims to inform, empower, and help you breathe a little easier.
Providing patients with comprehensive and compassionate care since 1987, Orsini is a leading specialty pharmacy in over 50 rare diseases, including pulmonary fibrosis. Our Pulmonology Center of Excellence works with biopharma innovators, healthcare providers, and payors to support patients and their families in accessing revolutionary treatments and to ensure that No Patient is Left Behind™.
Patients often find new hope through those treatments, like Robert, who is living with idiopathic pulmonary fibrosis (IPF). Just one month after connecting to treatment with Orsini’s support, his breathing felt easier, he weaned off of oxygen, and he regained quality of life.
“This medication has given me the chance to live a longer, fuller life.” — Robert, living with IPF
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